A-Z
Topics
Latest

Supporting adult carers

About

What is covered

This NICE Pathway covers support for adults (aged 18 or over) who provide unpaid care for anyone over 16 with health and social care needs. It aims to help people recognise themselves as a carer and understand their right to information and support. It covers identifying and assessing carers, as well as providing information and practical, emotional and social support and training. It includes support during end of life care.
Recommendations about supporting carers who are caring for people with specific health needs can be found in NICE guidance on those topics.

Updates

Person-centred care

People have the right to be involved in discussions and make informed decisions about their care, as described in your care.
Making decisions using NICE guidelines explains how we use words to show the strength (or certainty) of our recommendations, and has information about prescribing medicines (including off label use), professional guidelines, standards and laws (including on consent and mental capacity), and safeguarding.

Your responsibility

Guidelines

The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian.
Local commissioners and providers of healthcare have a responsibility to enable the guideline to be applied when individual professionals and people using services wish to use it. They should do so in the context of local and national priorities for funding and developing services, and in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Technology appraisals

The recommendations in this interactive flowchart represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, health professionals are expected to take these recommendations fully into account, alongside the individual needs, preferences and values of their patients. The application of the recommendations in this interactive flowchart is at the discretion of health professionals and their individual patients and do not override the responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or their carer or guardian.
Commissioners and/or providers have a responsibility to provide the funding required to enable the recommendations to be applied when individual health professionals and their patients wish to use it, in accordance with the NHS Constitution. They should do so in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Medical technologies guidance, diagnostics guidance and interventional procedures guidance

The recommendations in this interactive flowchart represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, healthcare professionals are expected to take these recommendations fully into account. However, the interactive flowchart does not override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or guardian or carer.
Commissioners and/or providers have a responsibility to implement the recommendations, in their local context, in light of their duties to have due regard to the need to eliminate unlawful discrimination, advance equality of opportunity, and foster good relations. Nothing in this interactive flowchart should be interpreted in a way that would be inconsistent with compliance with those duties.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Short Text

Everything NICE has said on supporting adults carers in an interactive flowchart

What is covered

This NICE Pathway covers support for adults (aged 18 or over) who provide unpaid care for anyone over 16 with health and social care needs. It aims to help people recognise themselves as a carer and understand their right to information and support. It covers identifying and assessing carers, as well as providing information and practical, emotional and social support and training. It includes support during end of life care.
Recommendations about supporting carers who are caring for people with specific health needs can be found in NICE guidance on those topics.

Sources

NICE guidance and other sources used to create this interactive flowchart.
Supporting adult carers (2020) NICE guideline NG150

Quality standards

Quality statements

Effective interventions library

Effective interventions library

Successful effective interventions library details

Implementation

NICE has produced resources to help implement its guidance on:

Information for the public

NICE has written information for the public on each of the following topics.

Pathway information

Person-centred care

People have the right to be involved in discussions and make informed decisions about their care, as described in your care.
Making decisions using NICE guidelines explains how we use words to show the strength (or certainty) of our recommendations, and has information about prescribing medicines (including off label use), professional guidelines, standards and laws (including on consent and mental capacity), and safeguarding.

Your responsibility

Guidelines

The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian.
Local commissioners and providers of healthcare have a responsibility to enable the guideline to be applied when individual professionals and people using services wish to use it. They should do so in the context of local and national priorities for funding and developing services, and in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Technology appraisals

The recommendations in this interactive flowchart represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, health professionals are expected to take these recommendations fully into account, alongside the individual needs, preferences and values of their patients. The application of the recommendations in this interactive flowchart is at the discretion of health professionals and their individual patients and do not override the responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or their carer or guardian.
Commissioners and/or providers have a responsibility to provide the funding required to enable the recommendations to be applied when individual health professionals and their patients wish to use it, in accordance with the NHS Constitution. They should do so in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Medical technologies guidance, diagnostics guidance and interventional procedures guidance

The recommendations in this interactive flowchart represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, healthcare professionals are expected to take these recommendations fully into account. However, the interactive flowchart does not override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or guardian or carer.
Commissioners and/or providers have a responsibility to implement the recommendations, in their local context, in light of their duties to have due regard to the need to eliminate unlawful discrimination, advance equality of opportunity, and foster good relations. Nothing in this interactive flowchart should be interpreted in a way that would be inconsistent with compliance with those duties.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.

Supporting information

Carers' assessments

Anyone who is an unpaid carer for a family member or friend has the right to discuss their own needs with their local authority, separate to the needs of the person they care for. This is a statutory requirement under the Care Act 2014. Carers can discuss anything they think would help with their own health and wellbeing or with managing other aspects of their life, including their caring role. The local authority uses this information to decide what help it can offer.

Carer's assessment

Anyone who is an unpaid carer for a family member or friend has the right to discuss their own needs with their local authority, separate to the needs of the person they care for. This is a statutory requirement under the Care Act 2014. Carers can discuss anything they think would help with their own health and wellbeing or with managing other aspects of their life, including their caring role. The local authority uses this information to decide what help it can offer.

Carers' breaks

These services, which would include respite care, give carers a break by providing short-term care for the person with care needs in their own home or in a residential setting. This can mean a few hours during the day or evening, overnight, or a longer-term break. Carers' breaks may be one-off or more regular arrangements. They can also benefit the person with care needs by giving them the chance to try new activities and meet new people.

Carer champion

A designated member of staff (for example in a GP surgery, hospital, workplace, leisure or similar setting) who is given the task of supporting and speaking up for carers. They can act as a key contact for carer information and advice in that setting, providing knowledgeable, expert advice as well as training other practitioners working within the service.

Carer champions

A designated member of staff (for example in a GP surgery, hospital, workplace, leisure or similar setting) who is given the task of supporting and speaking up for carers. They can act as a key contact for carer information and advice in that setting, providing knowledgeable, expert advice as well as training other practitioners working within the service.

Carer support plan

If a carer is identified as having eligible needs following an assessment under the Care Act 2014, the local authority must provide a support plan that sets out how those needs will be met. The support plan must be developed in partnership with the carer and should set out the outcomes the carer hopes to achieve, including their wishes around providing care and accessing work, education and leisure. The support plan must be regularly reviewed.

Peer support

Peer support involves carers sharing experiences, practical advice and emotional support and improving their understanding of the options available to them and the person they care for. Peer support can take a number of different forms, including one-to-one friendships and support based on lived experience and contact through third sector organisations, support groups or online networks. Peer support is often but not always provided by volunteers, for example volunteer befrienders.

Replacement care

Care that replaces the care normally given by a regular carer. It may be needed either on a planned basis or in an emergency. Replacement care may be offered by the local authority, if the person needing care has had an assessment and is entitled to care and support services, or if the carer is entitled to help. Otherwise, people may have to pay for it.

Glossary

(a carer is an adult (aged 18 or over) who provides unpaid care and support to a family member, partner or friend (aged 16 or over) because of a disability, health condition, frailty, mental health problem, addiction or other health or social care need)
(a carer is an adult (aged 18 or over) who provides unpaid care and support to a family member, partner or friend (aged 16 or over) because of a disability, health condition, frailty, mental health problem, addiction or other health or social care need)

Paths in this pathway

Pathway created: January 2020 Last updated: January 2020

© NICE 2020. All rights reserved. Subject to Notice of rights.

Recently viewed